Welcome!
Welcome to my Website. This site contains news,general
information on
Motor Neurone Disease (MND),
Amyotrophic Lateral Sclerosis (ALS),
Lou Gerhig's Disease
and the activities of the Irish Motor NeuroneDisease
Association (IMNDA) who are a really great bunch.
NEWS: 20th June 1998
This page will soon be up and running again
Jamie Killeen, son
As well as having info on Motor Neurone, I've dedicated
space to theWest Clare Railway (WCR), and some
jokes.
I'm just updating my site, and hopefully peoplewill
visit again. I'm not too sure if all the links are still workingproperly
but I hope to sort them out over the next few weeks. I hadnamed my
files .html so I'm going to revert back to .htm. I havegot used to
working with windows 95 and Dragon dictate voice activatedsoftware.
This brilliant website has been reviewed and givena
3-Shamrock Doras rating by Tinet. 
The Irish Times newspaper featured the web siterecently
in their internet column. The article covered the various supportgroups
now established on line in Ireland.
THE JOKE BOOK
Compiled from jokes sent to me from around theworld
by MND patients and good friends. All proceeds will go to the IMNDA.Thanks
to you for buying it, the volunteers for selling it, and especiallyto DOCUPRINT
for sponsoring the full printing and binding costs.
Cost : £2 or more
Ring Freefone : 1800 403 403 for your copy!!
I'm locatedin
Dublin, Ireland. I'm 44 years old, and have a background in Civil Engineeringand
Project Management. I'm married with 3 children, ranging in ages between17
and 8. The burden of my disability is really on Kath and the kids....theyare
a great support.
Click HERE to see a familyphoto
I was diagnosed with MND in Beruit in November1994.
I'm still working from home for my company ESBI,who
have been very supportive indeed.
Recently we've been relying on an agency ( PrivateHome
Care ) to send carers while Kath is out teaching. The service is veryefficient
and run by Elizabeth.Their phone
number is Dublin 6245369 / 6219101. Antoinette Coughlan,and two other
carers, help to keep me operational and working.
Since my last update, I have stopped taking thedrug
Riluzole, and have been on a homeopathic remedy (polio). I had beendoing
TM and found it good... I'm afraid, I have not got back to it.
"I have great hopes for 1997..in terms of bigbreakthroughs
in MND..LET'S TRY TO GET THE JIGSAW PIECES TOGETHER". Well I suppose here
in March 1998 my thoughts are slightly different... Will the cavalry get
here on time!!!
For many years now I have been interested in theWest
Clare Railway (WCR) and have been active in a group which is restoringa
section of the WCR. I am sure that there is going to be a hugesuccess
in the progress of the West Clare Railway this year.
I've had
visitors to
the site to date (..from Spain, Australia, Iceland, U.S, Germany etc.
Page designed and maintained by SteveKilleen
™ © 1999
Why not look at Irelandon
Line for all things Irish.